Sunday, November 8, 2015

How Movie Outings Are Extremely Selfish When You Are Sick

I can count on my fingers the number of times I've enjoyed a date night in the past few years. Our family has been through many trials and tribulations throughout this time. I had a life saving invasive brain surgery for Chiari Malformation where I had no flow of cerebral spinal fluid and my brain stem was fully compressed. I spent much time in a wheelchair and had to learn how to walk again and operate outside of compression. I had a second emergency brain surgery due to a massive super infection. There have been so many setbacks, such extreme and unbearable pain along with permanent neurological issues. Then we witnessed the recent premature birth of our beautiful grandchild at 29 weeks whom we are so blessed to have her in our lives. She is medically fragile, suffering from some medical setbacks including neutropenia (a disease of the white blood cells that disables her immune system from being able to fight off even a simple cold).

My body has been through so much, my immune system is extremely fragile and I am unable to fight off illnesses. Even a simple cold that lasts a few days for the average person can take weeks to months for my body to fight off as I continue to recover and battle procedures and surgeries.

This is the tiniest little fighter I know. We are so blessed to have her at home with us now. We have to be extremely careful not to bring any germs home to her until she can grow stronger and capable of fighting off illnesses.

As embarrassing as it can be, I have no choice but to wear a mask when I am out in public. People stare at me. People avoid me. People make rude comments directly to me. People stop me and ask if I'm contagious. People ask me why I'm out. I've had people scream at me when caught off guard from seeing a mask as they are playing with their phones (walking distracted) and happen to look up as we enter/leave a store at the same time. People are scared of me. People judge me and believe that I have some nasty funk that I'm going to give them which couldn't be further from the truth. I am simply trying to stay well and protect myself and the sweet little preemie at home.